|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Hello all. I'm wondering if any of you could help me. I have had RA for over half my life, I'm now 62. I have been on Etanercept for about ten years and until about a year ago it was a brilliant treatment, I'm having to boost it now with steroids and leflunomide, my condition is okay, much much better than it was before biologics and I'm hoping to stop the steroids soon and get back to (my) normal. I've had lots of surgery done to my hands and feet over the years and am due to see a consultant in a few weeks for more surgery to my feet. Foot surgery in the past has been a bit hit and miss, I want the next to be a `hit' and am wary of letting a 'part-time' foot surgeon do what needs doing. So I am asking if anyone on the forum could recommend a surgeon who specialises in Rheumatic foot surgery. I live near Epsom in Surrey and would be prepared to travel. Thanks, Jon.
|
|
Rank: Advanced Member
Groups: Registered
Joined: 8/1/2010 Posts: 255 Location: hampshire
|
Hi Jon My bunion operation was very successful and I have heard only good things about my surgeon. He is Mr Lyndon Jones and works at New Hall hospital in Salisbury, Hampshire. Hope you can find someone to help you. Sue
|
|
Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
|
hi Jon,
can't help re foot surgery .. but just wanted to say welcome to the Forum, i see you are not a new member but this is your first post.
Suzanne
|
|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Thanks for your recommendation Sue. I'll add the surgeons name to my list, now, of two! Perhaps I could let them have a foot each............
Thank you for your welcome Suzanne.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
|
Hi Jon and welcome. The hospital for rheumatic diseases in Bath is one of the five centres of excellence in the UK, as is Wrightington and The Agnes Jones Hunt in Shropshire. I appreciate that these hospitals are all a good way from your home, but under the present system you can ask to be seen at the hospital of your choice. I live some 40 odd miles from Wrightington, but chose to have my hip surgery there. It is also completely acceptable to ask any surgeon about his success rates with the particular op you are about too have. They are duty bound to tell you their figures. The District Nurse can also be a source of sound information. Bearing in mind they visit patients post op and will know which ops have been successful, who is good and who is not. As they don't have any particular axe to grind, they always seem to be very impartial. Once you have a name, do some research. Check out the hospital they practice in is is it classed as poor, fair or good and look àt all the info you can access. You can also speak to the NRAS helpline as they will also have the names of surgeons who specialise in foot surgery. Hope all goes well. Keep in touch.
|
|
Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
|
Hello I saw dr bowyer at Southampton general recently and was very impressed He's well respected apparently But I do think the 'co-ordinated care' aspect requires consideration I'm pleased that the others have mentioned alternatives There is a very posh private hospital in Surrey for rheumatic diseases And then there's st Thomas' and guys Dr Gabriel is a good rheummy there but I don't know the surgeons there Ailsa at Nras would help I'd think with some names All the best how to be a velvet bulldoser
|
|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Thank you for your info and thoughts too Jeanb and jenni_b.
I have been doing a lot of Googleing and all is becoming clearer.
Best wishes
|
|
Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009 Posts: 2,127 Location: Thornton Cleveleys
|
Hi Jon, Welcome to the forum, another member with a long history of RA! Glad to hear you have been able to keep things relatively well controlled. I failed on Enbrel after several very successful years and am now on Tocilizumab (after failing Rituximab!) which has put me into drug induced remission. Don't forget you can always request further biologic intervention if you feel this would be of help to you. I have had foot surgery on both feet but my surgeon took early retirement. Not that it's much good ... I live in the North West, close to Blackpool. Bit far for you. I would definitely suggest giving NRAS a call, they will be able to offer good advice on foot surgeons, and if they don't know, they invariably know someone who does! Good luck with your search Lyn
|
|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Thanks for your advice Lyn.
Unfortunately the NRAS cannot recommend surgeons. They say individual members can offer recommendations but not the NRAS as they do not have the experience of having surgery. Shame as it would be most helpful.
All the best
|
|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Hello again,
Had a consultation with foot surgeon yesterday and after seeing x-rays of my feet decided there is little option than to have surgery.
Walking is very important to me, It's my hobby, it's how I keep fit, I'm a geologist I need to be able to climb and walk over rocks, I can't be doing with sitting around. I need my feet to work!
Every single toe on both my feet is dislocated.
Surgeon is going to remove bone from the toes and leave them pointing forward so that walking should be less painful. As it is I don't use my toes much, walking callouses are behind my toes, so I'm hoping for a good result.
If any of you have had this done I would like to learn from your experience, good and bad.
Please get in touch,
Regards, Jon
|
|
Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
|
Hello Jon I had bunion & hammer toes op last June. The process was two toes broken and straighten with metal rods that stayed in for 6 weeks and slid out by the surgeon with no pain. My bunion (bone) has been smoothed down/removed and re pinned like scaffolding inside. Obviously my foot cosmetically looks fantastic I was awake for my op and had 6 painful long needle injection inserted into my nerves in my foot which partial numbed the area. My foot post op took a few months for the swelling to go down. Would I have my other foot done? At the moment no, it cosmetically can stay as it is. Everyone is different with operations and recovery, my experience with bunion op was more painful than my first knee replacement op this February at the age of 40. Would I have my other knee done? Yes without doubt! I was more mobile post op than my foot. A personal choice. Jane
|
|
Rank: Newbie
Groups: Registered
Joined: 4/12/2010 Posts: 7 Location: Burgh Heath
|
Thanks for that Janet,
Your experience is much appreciated.
I may get back to you if that's okay.
Jon
|
|
Rank: Advanced Member  Groups: Registered
Joined: 5/2/2012 Posts: 670 Location: where the sun always shines :o
|
Feel free to pick my brains Jon
|
|
|
|